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Patient Advocacy & Engagement at Neurogene
Our Approach
A foundational principle of our work is to integrate the perspective of the rare patient community into everything we do.
We consider patients and families to be experts. Their unique insights help us better understand how a rare disease truly impacts patients and their families.
We listen to patients and families and incorporate their perspective throughout the research and development process.
Patients and families are at the core of our work. We recognize and honor that it is their contributions that make scientific advances possible. We strive to support them throughout their participation in clinical research.
Clinical Programs and Resources
Neurogene’s commitment to patients and families affected by severe neurological diseases goes beyond the science; we want to raise awareness and connect the rare disease communities to resources and support that can help guide their journey.
Click below for additional information and resources.